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スペインの妊娠中絶法は、危篤な奇形胎児の妊娠中絶を制限する予定、重篤奇形胎児出産経験のある母親は、妊娠中絶制限に反対
GLORIA MUÑOZ
“Si me quedase embarazada de otro bebé tan enfermo iría a abortar fuera”
La hija de Gloria Muñoz murió con siete meses de atrofia muscular espinal de grado 1
"Es inconcebible que obliguen a las personas a pasar por ese dolor", dice la madre
MUNOZ GLORIA
"If I get pregnant of another baby so ill go to an abortion was"
Gloria Muñoz's daughter died seven months of spinal muscular atrophy grade 1
"It is inconceivable that force people to go through that pain," says the mother
'Nobody has the right to force the suffering', by JAVIER ESPARZA
Gallardón said that the malformation of the fetus shall not constitute grounds for abortion
Spain, Ireland and Malta, to the tail of the EU in abortion
Mary R. Sahuquillo Madrid 25 JUL 2012 - 20:33 CET
"If I get pregnant of another baby so ill go to an abortion was"
Gloria Muñoz's daughter died seven months of spinal muscular atrophy grade 1
"It is inconceivable that force people to go through that pain," says the mother
'Nobody has the right to force the suffering', by JAVIER ESPARZA
Gallardón said that the malformation of the fetus shall not constitute grounds for abortion
Spain, Ireland and Malta, to the tail of the EU in abortion
Mary R. Sahuquillo Madrid 25 JUL 2012 - 20:33 CET
Gloria Muñoz was flooded eyes start talking about Alba. He clasps his hands on her lap and the press. "The pain and suffering we have experienced not wish it on anybody," he says, wiping her eyes with small touches, bordered in blue. Alba is his daughter. Died of spinal muscular atrophy grade 1 who suffered a serious illness that causes extreme muscle weakness, difficulty breathing and feeding. Untreatable. Only physical therapy, to try to form some muscle tone, and palliative, to relieve pain. That for some time: most of those affected by this disease, about four of every 100,000 inhabitants die before the age of three years. Alba lived for seven months. The latter, plugged into a probe.
Gloria remembers and breathe deeply. I could not bear to go through the same thing. "See your son is so tremendous," says outright. Nearly a year ago that the girl died and she and her husband, Robert, would like to have another child. Also his little David, six years, is delighted with the idea. "We are babysitting the three," he says with a small smile. But in recent days, the fear is stronger than the illusion in this couple, it official, he EMT worker. Following the decision of the Minister of Justice, Alberto Ruiz-Gallardón, to limit abortion for serious fetal malformations, fear they can not terminate the pregnancy if an abnormality is detected as the one suffered Alba.
Panic at diagnosis is not unfounded. Gloria and Robert are carriers of the gene for spinal muscular atrophy, so that their children have 25% chance of getting it. Before the birth of her small did not know. It is a rare condition and never, they consist, there had been cases in their families. So during pregnancy were tested for it. Now, with a prenatal genetic test called chorionic biopsy, which is done in week 13 of gestation, would be known. "I have very clear that if positive would not proceed. I would go to an abortion outside London, if necessary. Whatever it costs me, but do not turn to go through it. That I assure you, "announces Gloria.
Muñoz's children have 25% risk of inheriting the disease
It is an active and full of life, but her voice trembles. This time there is sadness, but with indignation. "No one, until you've lived through it, knows what it suffers. It is inconceivable that Gallardón intended to force people to go through situations that cause this pain, "he remarks with pursed lips. Account that has sent a letter to the minister to explain everything. The pain of watching a child die. Being unable to do almost anything to avoid suffering.
A small muscle problems Alba was diagnosed two months. "When was not seen. It was really cute, chubby ... We ate at the kisses, "the mother said. Get the phone and shows a picture of a chubby baby with dark hair. Then another with small, much thinner, probed. At first, he says, did not know what was wrong. He did dozens of tests. "I thought maybe I ran out walking. I had hoped, but when told he had and told us he was going to die, I sank, "says Gloria. From the initial problems was several months. Days and nights with aseptic smell. A hospital. Medical consultations and uncertainty. And then when he got the diagnosis, days of pain.
Alba needed palliative care, and oxygen was probed
Gloria and her husband decided it was ready when she would go home from the hospital, to spend his last moments. It was hard. The couple, Gloria and her mother took turns to care for the little 24 hours. To supply oxygen and injecting morphine needed for palliation.
Robert and Gloria, advised by psychologists of the palliative care unit, explained to David that Alba was going to die. "He behaved great. She understood, took leave of his sister ... At first she wondered much. With the World Cup team wanted to know what was going Alba. When he wanted to know where you are now, we told you has become a star and who is in heaven. Since then his desire is to see it fly at night, "says the woman gasped. Closes his fists and continues: "Many people say that at least I have known a few months I have had my daughter in her arms. But if I had known this before, would have aborted. What she has suffered, we suffered what we ... That's not human. "
Gloria remembers and breathe deeply. I could not bear to go through the same thing. "See your son is so tremendous," says outright. Nearly a year ago that the girl died and she and her husband, Robert, would like to have another child. Also his little David, six years, is delighted with the idea. "We are babysitting the three," he says with a small smile. But in recent days, the fear is stronger than the illusion in this couple, it official, he EMT worker. Following the decision of the Minister of Justice, Alberto Ruiz-Gallardón, to limit abortion for serious fetal malformations, fear they can not terminate the pregnancy if an abnormality is detected as the one suffered Alba.
Panic at diagnosis is not unfounded. Gloria and Robert are carriers of the gene for spinal muscular atrophy, so that their children have 25% chance of getting it. Before the birth of her small did not know. It is a rare condition and never, they consist, there had been cases in their families. So during pregnancy were tested for it. Now, with a prenatal genetic test called chorionic biopsy, which is done in week 13 of gestation, would be known. "I have very clear that if positive would not proceed. I would go to an abortion outside London, if necessary. Whatever it costs me, but do not turn to go through it. That I assure you, "announces Gloria.
Muñoz's children have 25% risk of inheriting the disease
It is an active and full of life, but her voice trembles. This time there is sadness, but with indignation. "No one, until you've lived through it, knows what it suffers. It is inconceivable that Gallardón intended to force people to go through situations that cause this pain, "he remarks with pursed lips. Account that has sent a letter to the minister to explain everything. The pain of watching a child die. Being unable to do almost anything to avoid suffering.
A small muscle problems Alba was diagnosed two months. "When was not seen. It was really cute, chubby ... We ate at the kisses, "the mother said. Get the phone and shows a picture of a chubby baby with dark hair. Then another with small, much thinner, probed. At first, he says, did not know what was wrong. He did dozens of tests. "I thought maybe I ran out walking. I had hoped, but when told he had and told us he was going to die, I sank, "says Gloria. From the initial problems was several months. Days and nights with aseptic smell. A hospital. Medical consultations and uncertainty. And then when he got the diagnosis, days of pain.
Alba needed palliative care, and oxygen was probed
Gloria and her husband decided it was ready when she would go home from the hospital, to spend his last moments. It was hard. The couple, Gloria and her mother took turns to care for the little 24 hours. To supply oxygen and injecting morphine needed for palliation.
Robert and Gloria, advised by psychologists of the palliative care unit, explained to David that Alba was going to die. "He behaved great. She understood, took leave of his sister ... At first she wondered much. With the World Cup team wanted to know what was going Alba. When he wanted to know where you are now, we told you has become a star and who is in heaven. Since then his desire is to see it fly at night, "says the woman gasped. Closes his fists and continues: "Many people say that at least I have known a few months I have had my daughter in her arms. But if I had known this before, would have aborted. What she has suffered, we suffered what we ... That's not human. "
ムニョスGLORIA
"私は別の赤ちゃんの妊娠した場合など病気の中絶に行くことだった"
グロリア·ムニョスの娘は、脊髄性筋萎縮症の1年生の7ヶ月に死亡した
"それは力の人々はその痛みを通過するとは考えられない、"母は言う
JAVIERエスパルサすることにより、"誰も苦しみを強制する権利を持っていません"
ガラルドンは、胎児の奇形は、妊娠中絶の根拠を構成するものではありませんと言った
中絶のEUの尾にスペイン、アイルランド、マルタ、
メアリー·R. Sahuquilloマドリード25 JUL 2012 - 20：33 CET
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